Adding Data to the Palliative Care Summary

Adding, editing and viewing data in the Palliative Care Summary screen is easy. There is a combination of tick boxes and data entry panes for the following information:

• Initial Palliative Care Plan - Displays and allows you to record the initial details of the Palliative Care Plan, see Recording an Initial Palliative Care Plan.
• Treatment Options - Displays and allows you to record the following:
  • Radiotherapy (7M37100 Radiotherapy NEC)
  • Chemotherapy (8BAD000 Cancer Chemotherapy)
  • Palliative Treatment (8BJ1 Palliative Treatment)

• Palliative Care Register (Qualifying Terms):
  • 1Z01.00 Terminal illness - late stage
  • 8BA2.00 Terminal care
  • 8BAP.00 Specialist palliative care
  • 8BAS.00 Specialist care treatment - daycare
  • 8BAT.00 Specialist care treatment - outpatient
  • 8BJ1.00 Palliative treatment
  • 8CM1.00 On gold standards palliative care framework
  • 8H6A.00 Refer to terminal care consult
  • 8H7L.00Refer for terminal care
  • 8H7g.00 Referral to palliative care service
  • 8HH7.00 Referred to community specialist palliative care team
  • 9EB5.00 DS 1500 Disability living allowance completed
  • ZV57C00 [V]Palliative care

• Awareness and Understanding:
  • 1H...00 Awareness of diagnosis
  • 1H0..00 Patient aware of diagnosis
  • 1H0..11 Diagnosis known to patient
  • 1H1.00 Patient not aware of diagnosis
  • 1H2..00 Family aware of diagnosis
  • 1H3..00 Family not aware of diagnosis
  • 66W3.00 Aware of prognosis
  • 66W3000 Carer aware of prognosis
  • 66W3100 Relative aware of prognosis
  • 66W4.00 Unaware of prognosis
  • 66W4000 Carer unaware of prognosis
  • 67D1.00 Informing patient of prognosis
  • 67F1.00 Informing relative of prognosis
  • Syringe Driver Use:
    • 8BC2 Syringe Driver Commenced
    • 8BC5 Syringe Driver Discontinues

• Patient Contact List* - Displays all latest contacts for the patient and allows you to add new contact details. These details are from Registration contacts.
• Relevant Medical History* - Displays all medical history records with a priority of 1 and allows you to add further medical histories, see Adding/Removing Items to/from Relevant Medical History.
• Access information* - Displays and allows you to record the following Read codes:
  • 9189 Key Holder
  • 9NFG Address instruction.

• Other Agencies involved* - Displays and allows you to record the following Read codes:
  • 13G..00 Domiciliary services
  • 13G1.00 District nurse attends
  • 13G2.00 Health visitor visits
  • 13G5.00 Voluntary worker
  • 13G6100 Home help attends
  • 13G6300 Home help organised
  • 13G7.00 Meals on wheels
  • 13G8.00 Domiciliary chiropody
  • 13GZ.00 Domiciliary service NOS
  • 8HH0.00 Arrange care by relative
  • 8HH4.00 Arrange care attender
  • 8HH7.00 Referred to community specialist palliative care team
  • 8HHB.00 Referral to Social Services
  • 8HHJ.00 Referral to respiratory nurse specialist
  • 8HHN.00 Referral to voluntary service
  • 9N2i.00 Seen by diabetic liaison nurse
  • 9N2p.00 Seen by community heart failure nurse
  • 9NNA.00 Under care of practice nurse
  • 9NNK.00 Under care of dyspepsia specialist nurse
  • 9NNS.00 Under care of Macmillan nurse
  • 9NNY.00 Under multi-agency care
  • 9NNd.00 Under care of palliative care specialist nurse
  • 9Nh0.00 Under the care of community palliative care team
  • 9Nh1.00 Under care cancer primary healthcare multidisciplinary team

• Special note* - Displays and allows you to submit additional free text information to assist OOH staff manage your patient's care, see Adding or Updating a Special Note.
• Other useful palliative information* - Displays and allows you to record the following:

• Resuscitation Status - Defaults to Priority 1 select from:
  • 1R0..00 For resuscitation
  • 1R00.00 For attempted cardiopulmonary resuscitation
  • 1R1..00 Not for resuscitation
  • 1R10.00 Not for attempted CPR (cardiopulmonary resuscitation)

• Additional Drugs at Home - enter free text as required
• Catheter and Incontinence Equipment at Home - select from:
  • 9NgX.00 Catheter care equipment available at home
  • 9NgY.00 Continence care equipment available at home

• Moving and Handling Equipment at Home - 13CX.00 Moving and handling equipment available at home
• Has Oxygen for Home Use - select from:
  • 6639.00 Home oxygen supply
  • 6639.11 Home oxygen supply started
  • 6639.12 Oxygen at home
  • 66Yj.00 Home oxygen supply - cylinder
  • 66Yk.00 Home oxygen supply - concentrator
  • 66YI.00 Home oxygen supply - liquid oxygen
  • 745E000 Home oxygen support

• Preferred Place of Care - select from:
  • 8Ce..00 Preferred place of care
  • 8Ce0.00 Preferred place of care - home
  • 8Ce1.00 Preferred place of care - hospice
  • 8Ce2.00 Preferred place of care - community hospital
  • 8Ce3.00 Preferred place of care - hospital
  • 8Ce4.00 Preferred place of care - nursing home
  • 8Ce5.00 Preferred place of care - residential home
  • 8Ce6.00 Preferred place of care - learning disability unit
  • 8Ce7.00 Preferred place of care - mental health unit
  • 8Ce8.00 Preferred place of care - discussed with patient
  • 8Ce9.00 Preferred place of care - discussed with family
  • 8CeA.00 Preferred place of care - patient unable to express preference
  • 8CeB.00 Preferred place of care - patient declined to participate
  • 8CeC.00 Preferred place of care for next exacerbation heart failure
  • 8CeD.00 Preferred place of care for next exacerbation of COPD
  • 8CeE.00 Preferred place of care - discussion not appropriate

• Preferred Place of Final Care - select from:
  • 94Z1.00 Preferred place of death: home
  • 94Z2.00 Preferred place of death: hospice
  • 94Z3.00 Preferred place of death: community hospital
  • 94Z4.00 Preferred place of death: hospital
  • 94Z5.00 Preferred place of death: nursing home

*those with an asterisk are shared with the KIS screen